Happy Halloween! We were turned away from the APU this morning because Dayssi's counts aren't high enough to start Long Term Maintenance (LTM). They have dipped down again since our last post, and this morning she had an ANC of 610, which is 140 points shy of "ok for chemo." We spent a full 2 1/2 hours at the hospital anyway, getting ready for the procedure that never happened. We had to draw her blood and then wait for the counts to come back.
Dayssi and I wore costumes to the hospital, so that was kind of fun, and most of the nurses were dressed up too. India also wore her costume to school and the kids had a parade and Halloween party. Since Dayssi and I were released early we made it to India's festivities and we kind of tagged along so that Dayssi could be in the parade, which she loved. India was a super big sister, calling to Dayssi to come and participate in everything with her, to sit next to her for snack and for a class picture. I was very proud.
So I guess I shouldn't complain. The girls couldn't be happier today. But I'm disappointed that we didn't get the procedure under our belts, after all of the emotional prep work. I feel like we've been through the ringer, but we haven't. Kind of a waste. Oh well. We'll try again next week.
2 comments:
It sounds like a pretty good Halloween anyway.
What a wonderful big sister Dayssi has!!! I'm proud of her, too, and delighted that you and Dayssi had fun in costume and were able to get to India's festivities.
Next week is not very far away. Maintenance will keep till then.
Hugs and kisses to you all.
you are all doing such a fantastic job! deb, your comments are great and rival those of Kendrie's mom :-)
I know the count roller coaster can be a rough one but I always found it comforting that doctors saw low counts as a good sign - it means the chemo is working! So keep that in mind and we will think good thoughts for the next count check!
Hang in there!
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