Chugging along. Dayssi spent a big day at the hospital today (10am until 7:45 pm) starting the second half of delayed intensification, which involved administration of four chemo drugs, one in the spine under general anesthesia, the other three of which are new. It is my understanding that one of them (the dreaded Ara C shot, which it turns out does not have to be given as a shot) is really hard on the stomach, and that we are likely to have some vomiting over the next two weeks. Many families tell us also that anyone who had hair up until this point tends to lose all of it now.
But today Dayssi did great and she went to bed tonight feeling fine. We decided to leave her port accessed for the next four days so that we could administer the Ara C intravenously without poking her. And actually, they did the first dose for us in clinic today, we'll do two at home this week, and they'll do the fourth at the hospital on Saturday, before de-accessing her (taking out the line). Same drill for next week. So, as long as she doesn't dislodge the thing while she has it in, and as long as we are careful about keeping everything sterile, this should be easier for all of us.
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2 comments:
Hi Deb and Jim,
I have been following your blog since you started. Deb, my husband (Kevin) was a Sloan last year and took one of your classes. He really enjoyed it and we have been keeping tabs on Dayssi's progress ever since we found out. You are a truly amazing and inspirational family, our thoughts and prayers are with you.
Sincerely,
Tacha Shaw
I found myself holding my breath while reading this one! Good job, Dayssi!!
The alternative to the shots sounds to me like a big relief. Hugs and kisses to you all.
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