Thursday, December 28, 2006

Poofy Dress Greetings


Here, finally, are a couple of shots of the girls at Cousins Mike and Ann's wedding. Unfortunately Dayssi isn't smiling in the close up because she doesn't like to have her picture taken. I don't like to torment her with the camera, which is why there aren't more, better, shots. But, even without a smile, you can see how magical they were in the dresses which, after a crazy shipping fiascoe, finally landed at our hotel, smooshed into a small Fed Ex box, exactly one hour before we left for the ceremony. Phew.

Ring around the Rosie was lots of fun though, and the girls were mesmerized by "the bride." Ann, you are officially a legend in our household, right up there with Kim Possible, Oprah and Barbie (who tends to rescue her nameless male counterpart rather than the other way around). Our girls tend to think of themselves as knights in princess clothing. I love that. There's also been a lot of wedding talk, especially from Dayssi, who told me the other night with determination, "Mama, if I can't marry Daddy then I'm not getting married."

Anyway, the wedding was beautiful and it was especially magical for the girls. Thanks Mike and Ann, for including us!

Granny and Grandad were here for Christmas; they just left today. It was a nice, long, 10-day visit, but I think there are still unopened gifts lying around. Granny and Grandad LOVE to give presents, and the girls kinda like it that way!

The holidays have been fun but I have to say I'm exhausted. Jim and I went to the movies today and I started crying during the previews and didn't stop until the feature was done. We saw Dreamgirls -- it isn't THAT sad, either. But I thought it was very efficient of me, to be able to cry on a dime during the only two hour period that I've had to myself (no kids, no guests, no parties) in the past two weeks. I'm kinda like that.

Among other things, I'm very emotional these days about friends. There are some people in our lives who, especially during the past 8 months, have stunned me with their unflinching stamina and presence. We have not always been available, reliable, responsive, or very much fun. We are rarely proactive. Dayssi has often felt yucky, looked scary, and had an immune system that requires constant vigilance on everyone's part to avoid the spreading of germs. But nothing seems to drive these folks away. They aren't afraid of reaching out or assuming too much or saying the wrong thing. They understand that sometimes you need to talk about how awful it is to have a kid with leukemia, and other times you need to laugh at the insanity of it, or just talk about work, or gossip. They ask how we're doing and, whatever comes back, they take it, they listen, they laugh or cry with us, and they do us the great courtesy of trusting us to be able to bear the weight of their own struggles, which allows us to stay close to them.

It is another great gift of Dayssi's leukemia that these kinds of people have appeared and revealed themselves to be the remarkable people they are, showing me, without knowing it, how to be a better person myself.

Friday, December 22, 2006

All is well

Sorry for the lapse. Just busy, and waiting to find the camera, and re-attach the computer, and shopping, and attending lots of holiday parties, and trying to squeeze in our Hanukah celebrations around the edges, and Granny and Grandad visiting. Phew.

Dayssi's counts are holding steady and she feels great. She has a cold and cough but we checked her out at the hospital on Monday and there is no cause for concern.

Will try to post again soon with some pictures.

Happy Holidays!

Thursday, December 07, 2006

Celebrations

We are off to cousin Mike's wedding tomorrow in Arizona. I got the girls some gorgeous poofy wedding-ish dresses just for fun. Will try to take some pix and post when we return.

Everyone has a cough right now but Dayssi's counts seem to be stable and nothing is escalating out of control. She did start a new cycle with vincristine and a 5-day steroid pulse on Monday, so she is not feeling tip top. But the side effects should resolve by end of weekend for sure. I hope she'll feel well enough to enjoy her poofy self at the wedding!

We celebrated my birthday on Tuesday too, and that was a lot of fun. The girls bought me earrings (very glitzy, but I will be wearing them!) and India's kindergarten class suprised me by singing happy birthday when I dropped her off. I played hookey and spent the entire day with good friends, acting like ladies who lunch and just generally being decadent. All of this, combined with a little get together on Saturday night, and lots of beautiful gifts, cards, flowers, phone calls and emails from far away friends, made it a fantastic birthday. Thanks everyone!!