Coming home on Monday evening was a little like the movie of that title... war weary and shell shocked, we returned from our own Vietnam to a familiar but fundamentally altered previous life. Dayssi was glad to be back in her crib, and to have her trampoline to jump in, but still cross about the yucky medicines.
On Tuesday we returned to the hospital for her bone marrow tests and lumbar puncture and the pediatric anesthesia center was just another old stomping ground. She fell asleep even before the Propofol took effect. The procedures went smoothly and we went home at the end of the day.
We worked with our oncology nurse practitioner, Tamara, who is amazing, young, smart, approachable and as responsive as they get.
At home, we have started our new routine: meds in the morning – a Zofran appetizer (anti-nausea), a dexamethasone shot, a Pepsi chaser, a little Zantac to settle the stomach acid churned up by the dexamethasone, and a little Docusate to keep the bowels moving – apologies to those for whom this is more than you needed to know.
Friends and colleagues have been delivering delicious meals and even more presents for India and Dayssi, for which we are very appreciative. We have also gotten some tasty bottles of “daddy juice” (that’s wine for those of you unfamiliar with the euphemism), for which we are even more grateful.
Life is settling back into a routine and Dayssi is reverting to her playful, mischievous old self. Aside from the relentless hand washing and the daily heparin flushing of the central line (IV), we are beginning to feel like a semblance of normalcy is returning.
Thanks to all for the thoughtful and supportive blog comments, emails, and phone calls.
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